Ethics and newborn genetic screening : new technologies, new challenges /
| Other Authors: | , |
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| Format: | Book |
| Language: | English |
| Published: |
Baltimore :
Johns Hopkins University Press,
2009.
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| Subjects: |
Table of Contents:
- Fair distribution of newborn screening costs and benefits / Mary Ann Baily
- Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse
- An advocate's perspective on newborn screening policy / Jannine DeMars Cody
- Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross
- Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton
- State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen
- Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell
- The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.]
- What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.]
- Research for newborn screening : developing a national framework / Jeffrey R. Botkin
- Ethical and policy issues involving research with newborn screening blood samples / Karen Maschke
- Parental permission for research in newborn screening / Jeffrey R. Botkin
- Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin
- Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond
- What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.